Fragile X Carrier and Diving

[Vic R]

Now here's a difficult one.....If a current diving member, is diagnosed as a carrier of Fragile X, (potentially causes mental impairment), would this,or should this exclude them from SCUBA activities? Anyone have any ideas or thoughts!

[Edward]

Now here's a difficult one.....If a current diving member, is diagnosed as a carrier of Fragile X, (potentially causes mental impairment), would this,or should this exclude them from SCUBA activities? Anyone have any ideas or thoughts!

The responsibility for answering the "fitness to dive" questions on the Self-Declaration Medical Form is down to the individual, question 13 asks about any mental condition. If the answer is yes then its down to a diving medical referee to say whether they can dive or not.

IMHO, any other way of dealing with whether someone can or cannot dive is potentially discriminatory.

Regards

Edward

[scapaman]

Now here's a difficult one.....If a current diving member, is diagnosed as a carrier of Fragile X, (potentially causes mental impairment), would this,or should this exclude them from SCUBA activities? Anyone have any ideas or thoughts!
hi dude don`t do it my son as fragile x and there is no way on earth i would take him diving,they have no fear of anything including drowning don`t do it mate end of story. if you need to pm me thats fine cheers........

[MSutcliffe]

1. You have stated your member is a current diving member

2. You have been quite happy to have this member diving thus far.

Frankly, you have now found out a little piece of information. This hasn't really changed anything. You have said yourself - "potentially causes mental impairment" - ie, sometimes it doesn't, and there are varying degrees of impairment.

I guess you have gotten this info, search on google, and found this. Then thoguht you would ask for this advice. Well - here is my advice.

Get off you high horse. Stop trying to dig up dirt on your fellow members. Accept them for who they are. If they have to answer 'yes' to any questions on the medical form, then refer them to a medical referee. Otherwise, butt out and shut up. Do not try to judge this member on the basis of the scanty bit of info you have. Just get on with having them as a member, and going diving as you already have been.

There's my two-peneth worth. See threads passim for my rationale.

[scapaman]

1. You have stated your member is a current diving member

2. You have been quite happy to have this member diving thus far.

Frankly, you have now found out a little piece of information. This hasn't really changed anything. You have said yourself - "potentially causes mental impairment" - ie, sometimes it doesn't, and there are varying degrees of impairment.

I guess you have gotten this info, search on google, and found this. Then thoguht you would ask for this advice. Well - here is my advice.

Get off you high horse. Stop trying to dig up dirt on your fellow members. Accept them for who they are. If they have to answer 'yes' to any questions on the medical form, then refer them to a medical referee. Otherwise, butt out and shut up. Do not try to judge this member on the basis of the scanty bit of info you have. Just get on with having them as a member, and going diving as you already have been.

There's my two-peneth worth. See threads passim for my rationale.

ok so you know of fragile x yes?if you don`t look it up ,not only have the person in question to worry about but also the buddy .
like i`ve already said my son has fragile x and there is no way i would dive with him as a buddy pair we would both die they do not understand the fullness of it all .they is no spectrum on frag x its the same all over it only afects boys. and thats my bit to.

[MSutcliffe]

You shoudl all read the first post in this thread.

Look out for the word carrier

This says alot. Now go read.

The member is a current "active diving member." Whilst no further information is supplied - it sounds like the branch have been happily diving with the member for some time. why the hell should that change.

Feel free to read recent discussions I have initiated on exactly why ill-informed debates (such as the one the question in this thread will start) are entirely innapropriate.

I have reported the initiating thread as a 'bad post' on the following basis:
Dear Moderators.

As I have posted in reponse to the thread, I think that the discussion which has started on this thread contravenes the confidentiality of the branch member in question, and that it is an innapropriate discussion for these fora. It is likely that ill-informed statemetns by un-qualified individuals may lead to mis-leadign advice being taken up, and may dissrupt a branch members enjoyment of the sport of diving. On this basis I feel that the thread should be removed, as should further questions about members posed in this way.

Of course, and individual may ask a question about themselves, or with the affected individuals permission. This thread, however, is unreasonable.

--
Martin

[MSutcliffe]

Oh, an would you dive with yourself, or possibly your son's mother? Who did he inherit from - the carrier? I accept it can be a sudden mutation. How do you feel about me asking those personal questions of you - ill informed questions (because I know nothing about you). How do you feel about me raising debate about you and your family on this open forum? How do you think the member in quesiton on this thread woudl feel about this question being asked in public - the original poster has not stated that the member has given permission forthis discussion!

[scapaman]

You shoudl all read the first post in this thread.

Look out for the word carrier

This says alot. Now go read.

The member is a current "active diving member." Whilst no further information is supplied - it sounds like the branch have been happily diving with the member for some time. why the hell should that change.

Feel free to read recent discussions I have initiated on exactly why ill-informed debates (such as the one the question in this thread will start) are entirely innapropriate.

I have reported the initiating thread as a 'bad post' on the following basis:
Dear Moderators.

As I have posted in reponse to the thread, I think that the discussion which has started on this thread contravenes the confidentiality of the branch member in question, and that it is an innapropriate discussion for these fora. It is likely that ill-informed statemetns by un-qualified individuals may lead to mis-leadign advice being taken up, and may dissrupt a branch members enjoyment of the sport of diving. On this basis I feel that the thread should be removed, as should further questions about members posed in this way.

Of course, and individual may ask a question about themselves, or with the affected individuals permission. This thread, however, is unreasonable.

--
Martin
what ? the last time i looked this was a free country so i got the carrier bit wrong,which i will say sorry but this site lets us debate and talk about things like this ,so just because you thing it should be took off it should be? i think your wrong pal so get your head from up your bum and start acting like a normal person who listens to other peoples opinions with out getting on you high horse .
if you don`t i`m taking my ball in.and my dad is harder than your dad too.

[Vic R]

So lets see now. If this person who has recently been diagnosed with the condition as a CARRIER, but not suffering from the syndrome,is POTENTIALLY unfit to dive,then just signing a medical declaration as fit makes it OK. If this person then should lose it in some way and end up injuring/killing their buddy or themselves because of this issue then are you saying that is ok to!

As for digging up dirt, its a load of crap. I need to better understand the condition to ensure that all members within our branch are safe and can deal with a situation if it should arise. Yes we are happy to dive with this person, but we are not happy if a condition should have an adverse affect when 50m down.

We are just trying to adhere to some Safe Diving Practices.........you ever heard of them:mad:

[Vic R]

As a note, the member in question does know this topic has been posted and has no issue with it. They would like to know as much as anyone else if they may encounter problems underwater and how to deal with them. Up to this point, there have been minor issues, but are unknown if they are related. May just have been a bad hair day, who knows, so i asked the question...........got two sensible replies and a twat. Serves me right....i'll get me coat!::rolleyes:

[Vic R]

The responsibility for answering the "fitness to dive" questions on the Self-Declaration Medical Form is down to the individual, question 13 asks about any mental condition. If the answer is yes then its down to a diving medical referee to say whether they can dive or not.

IMHO, any other way of dealing with whether someone can or cannot dive is potentially discriminatory.

Regards

Edward


Thanks for that Edward,

We have advised the person to respond on the medical declaration in the correct manner, which was done. I am not looking to stop anyone from diving due to medical conditions,(not a doctor you see),however, we do wish to see if anyone has experienced this and if it may result in an "unfit to dive" scenario. This person may choose to answer no to all questions on the med form, however this does not absolve us of our responsibility,unless of course BSAC are telling us different!

Vic

[MSutcliffe]

so i got the carrier bit wrong,which i will say sorry but this site lets us debate and talk about things like this

I rest my case.

You have gotten it wrong, you have admitted it - you have provided duff advice, in a strong way, which could have resulted in a branch committee member trying to prevent a member from diving (unjustifiably).

And then you want to continue dishing out your nonsense, highly polarised advice on the matter.

Seeking unqualified advice from fora like this is dangerous.

Vic,
You got only one sensible reply - from Edward
You got one completley incorrect reply (from scapaman - he admits above)
And you got me defending the rights of your member to be treated fairly, with confidentiality, and to be assessed by those qualified to perform those assessments - not some jumped up know nothings on an internet forum posting innacurate information.

[Vic R]

I rest my case.

You have gotten it wrong, you have admitted it - you have provided duff advice, in a strong way, which could have resulted in a branch committee member trying to prevent a member from diving (unjustifiably).

And then you want to continue dishing out your nonsense, highly polarised advice on the matter.

Seeking unqualified advice from fora like this is dangerous.

Vic,
You got only one sensible reply - from Edward
You got one completley incorrect reply (from scapaman - he admits above)
And you got me defending the rights of your member to be treated fairly, with confidentiality, and to be assessed by those qualified to perform those assessments - not some jumped up know nothings on an internet forum posting innacurate information.


I am all for defending members and for treating people fairly, i am right behind you on that. I would never attempt to assess if someone is fit to dive or not, but if a condition will cause some form of adverse affect, then it is only fair to others/buddy to decide if they want to dive with this person or not. Personally, after 30+ years of diving i have had no problems diving with people who have conditions,but then i have been forewarned and forearmed to deal with problems which may arise. Some of which would never have been passed fit to dive,but as you say, its their life and enjoyment and my choice!

The purpose of this post, was to see if any advice was available to put a members mind to rest.

I think its fair to say this topic is done with, thanks for the input:)

[Adrian Kelland]

Scapaman,

If you don't want personal things said, don't use them yourself.

Now you have successfully brought yourself to our attention, please change your avatar to something more suitable. It too has caused complaint.

Adrian

[scapaman]

Scapaman,

If you don't want personal things said, don't use them yourself.

Now you have successfully brought yourself to our attention, please change your avatar to something more suitable. It too has caused complaint.

Adrian


why that is me .

[Adrian Kelland]

why that is me .
Really Den?

Or are you trying to get a record in being banned from various dive forums?

Consider this a warning. The last one.

Adrian

[Mike Halligan]

Vic,

PM me and I'll see how I can advise.

Mike

[amandaclaire]

I think you will find this thread started by Vic Robinson was malicious and without the permission of the person it was written about ,whom walked out of Richmond club with 5 others and joined another club in July 2007 ,due to bullying ,calls to their home and being excluded from club dives on a number of occasions,being told they were private.This person was not a member of his club in Sept 2007 of which he is aware
He wasnt given the permission of that person to talk openly on the forum, unlike myself , and was told 10 months ago, that the person was a fragile x carrier and had been told by a doctor , it no way affected her ability to dive ,It did mean there was a 50% chance of bearing a male members of her family with the problem ,requiring her to have ivf.
the person he is talking about is a former chairperson of a local club in competition to himself that he is trying to stop reforming ,
The person he has accused of being mentally impaired is a daughter of a university maths lecturer, she is a qualified accountant with 2 degrees,further post degree qualifications , 5 A levels and is one of 2 people presently chasing him for return of their personal kit and money richmond has refused to give back
the person he has been talking about has been diving 11 1/2 years, never had an accident and has been assisting instructing trainees for 2 years
They only got on one dive in the last year,in the club , which was the final straw for them,


M Sutcliffe your assessment was right , he was trying to dig up dirt on a former member


the club members ,along with others whom have left Richmond this year are happy and diving all summer at another club



for those interested ,go to the fragile x society and get their newsletter on female fragile x carriers.


need we say more , this man is clearly v bitter

[Adrian Kelland]

AmandaClaire,

Vic did not mention any names and we had little chance of identifying who he was taling about. Indeed we did not even know Vic's full name. You have mentioned permission - do you have Vic's to show his full name?

While the forum might be useful for asking questions, this kind of tit-for-tat mud slinging does not help either of you.

Adrian

Edit: Temporarily closed.